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Our goal with Rett.com is to create an online “meeting place” for the worldwide Rett Syndrome Community. The community response so far has been well beyond our expectations. We have already received visits, comments, and suggestions from a host of people who are related in some way to those with Rett Syndrome. This includes: parents Rett Syndrome is a severe neurological disease that is the most physically disabling of the autism spectrum disorders. Caused by mutations in the gene MECP2, Rett Syndrome affects primarily girls, striking at random in early childhood and destroying speech, normal movement and functional hand use. Many with Rett Syndrome become wheelchair bound; those who walk [...] Thank you for making Rett Syndrome Magazine the fastest growing website in the Rett Syndrome Community. In just our second full month of on-line publishing we have grown significantly, now serving over 1200 individual visitors worldwide per month! At Rett Syndrome Magazine we are constantly looking to improve the way we bring you information, insight, [...] Date Sunday, June 10, 2007 Location The Meadows Golf Club, Grand Valley State University, Allendale, Michigan This "must play" in Grand Rapids has played host to several NCAA events and you can see why. A "beautiful course that is well maintained" the "links-style" layout boasts a "wonderful rotation of holes" that have "a little bit of everything". Charities [...] After 42 hours, 26 minutes and 4 seconds of tattooing, Marshall Olsen and Adam Kemp declared triumph. The friends decided they had broken the record for the world’s longest tattoo session, according to Guinness World Records. They collected donations, so far about $900, for the American Cancer Society and the International Rett Syndrome [...] Rett Syndrome Advocate Coleen McLoughlin has been signed up as a presenter for ITV in an exclusive two-year deal. 20-year old Lindsey Ross, a young woman with Rett Syndrome is denied a Federal Court appeal to attend high [...] The increase in autism cases is creating challenges for public schools across Michigan that are charged with providing a free education to all children, even if that means they have to treat a disability before a child can learn. Because insurance companies rarely cover costly therapies and programs for children with autism, the schools are often their only source of treatment. And the schools are searching for new approaches to reach [...] Chicago lawyer who represented a child with Rett Syndrome for free drowns during a triathalon fundraiser for the Leukemia and Lymphoma [...] Forbes Magazine reports that Novartis has compounds in preclinical tests that target Rett syndrome, a rare inherited brain [...] |
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