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Here is the official news. We pledge our full assistance to this newly formed organization and look forward to great things for the Rett Syndrome Community and we look forward to hearing more from IRSF about their plans. OFFICIAL PRESS RELEASE: FOR IMMEDIATE RELEASE June 27, 2007 CONTACT: Chuck Curley 781-762-2240 781-301-1718 International Rett Syndrome Association and Rett Syndrome Research Foundation Complete [...] HOUSTON (June 19, 2007) – Texas Children’s Hospital today announced a $500,000 donation from Enbridge Energy Company, Inc. to benefit the Texas Children’s Neurological Research Institute, the world’s first dedicated pediatric neurological research facility. “This generous gift propels Texas Children’s Hospital’s efforts to perform groundbreaking research that is designed to lead to innovative treatment options for [...] Once again the subject of embryonic stem cell research is making the political news. Recently we told you about a new company called BioEden, that cryogenically preserves baby teeth for stem cell therapies. Like many parents of young children with Rett Syndrome we sent away for more information about this company. I was surprised to [...] Rett Syndrome Video Channel (www.rett.tv), a service of Rett Syndrome Magazine, added its 40th video today, further serving the Rett Syndrome Community with additional insight into this disorder. Included in the latest additions are videos showing children from a variety of countries worldwide, showing that Rett Syndrome is a disorder that knows no boundaries and affects each [...] Publisher’s Note This wheelchair has been found as of June 11, 2007. Follow Up Story There is some good news for a south St. Louis family whose van was stolen with their daughter’s special wheelchair inside. FOX 2 News has just learned the van was recovered and the wheelchair. Melissa Berry’s 6-year-old daughter Victoria has [...] June 28, 2007 is the night of the big fundraising event of the year for the Rett Syndrome Research Foundation and this year marks its 5th year in New York City. Rett Syndrome fundraisers all over the world can learn a great deal about successful event fundraising from how this event is staged and promoted. The event [...] June 28, 2007 is the night of the big fundraising event of the year for the Rett Syndrome Research Foundation and this year marks its 5th year in New York City. Rett Syndrome fundraisers all over the world can learn a great deal about successful event fundraising from how this event is staged and promoted. The event [...] Source Grand Rapids Press, Grand Rapids, MI, circulation 133,000 Excerpt Progress comes slowly for Maiya Novitsky, a 4-year-old with Rett syndrome. Her parents consider just maintaining her current level of ability an accomplishment. But her father, Scott Novitsky, said he is worried Maiya — and other students with severe disabilities — will regress dramatically if she is denied [...] Very interesting news from a new company formed by an executive formerly with the U.S. National Institute of Health. You may have seen this technology featured on television recently. We recently signed up for their free information package. Breakthrough treatments using stem cells are being discovered today and will continue to emerge in the decades [...] Publisher’s note: This is exciting news for the entire Rett Syndrome Community! As members of IRSA and long time supporters of RSRF, we look forward to being of service to this newly combined organization. Here is the press release in its entirety: News Release: Monday, June 04, 2007 Rett Syndrome News Release For Immediate ReleaseJune [...] |
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