Greetings! It has been a while since some of you have heard from us. I want to wish you all the very best this holiday season.
I have been personally a bit under the weather for the past several weeks, but I am getting much better now. Special thanks to all of you who offered your emails and prayers for my recovery. I am feeling much better now.
Being physically ill for an extended period of time reminded me of the tremendous responsibility of family caregivers of people with Rett Syndrome. For parents, bothers, or sisters out there who are interested, I wanted to pass along this link to the National Family Caregivers Association. Their website offers a great deal of care giving resources of interest. I had the pleasure of speaking with the founder of this organization several years ago at the World Congress on Disabilities and one of the key themes to the organization’s success is “connecting caregivers”. Here is their website link: