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In a front page story, The Irish Times reported on February 2, 2008 that the State has reversed its position and agreed to pay for a spinal operation in London for a 12-year-old Cork girl with Rett Syndrome who has been on a waiting list for surgery at a Dublin hospital for 10 months. In an [...] Virginia Families and Richmond, VA Resident/Chairman of the International Rett Syndrome Foundation Host Fundraiser Featuring Singer/Songwriter Kevin Black Promising Research Inspires Increased Efforts; American Idol Contestant Sparks Rett Syndrome Awareness RICHMOND, VA (January 25, 2008) – Recent breakthroughs in Rett syndrome research with potential implications for reversing other neurological disorders are inspiring Richmond’s first-ever International Rett [...] The Rett Syndrome Research Trust (RSRT), a relatively new Rett Syndrome research organization, was awarded a €30,000 (approximately $44,181) grant from the charitable arm of the Tax Free World Association (TFWA) in an announcement dated January 25, 2008. TFWA is the world’s largest Duty Free and Travel Retail Association, with a membership of 420 brands, supplying the global [...] The International Rett Syndrome Foundation (IRSF) unveiled its all-new website in late January 2008. The site is located at www.RettSyndrome.org. The new site provides an unprecedented array of online services and supports for the Rett Syndrome Community, including forthcoming Rett Syndrome forums and chat rooms. Over the past few weeks we’ve enjoyed seeing the site progress to [...] |
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