Here’s a quick and interesting graphical guide to Rett syndrome from a customer insight and strategy business called Beyond Analysis. It was inspired by their charity of the year the Rett Syndrome Research Trust UK.
Archive for category General
Here’s first-hand perspective of what it is like for a three-year old child and her family to go through the heart-wrenching regression phase of Rett syndrome:
Here’s an interesting story written by a Rett Mom from Australia and published in The American Journal of Medical Genetics. Many of us in the Rett syndrome community can relate to the challenges facing parents and doctors in the quest for a diagnosis.
This is yet another great way for a person with Rett syndrome to make a difference in the lives of others!
Congratulations to the professionals at the Jan and Dan Duncan Neurological Research Institute at Texas Children’s Hospital on it’s success during it’s first full year of operation…and special thanks to the Duncans!
As you can see, we are developing an all-new Rett Syndrome web portal aggregating information from our other Rett Syndrome websites, including Rett.tv, RettSyndrome.info, and RettBooks.com.
If you have any questions about this site, please send us an email: mail@rett.com