Rett Press: Major Donation to Benefit Texas Children’s Neurological Research Institute

HOUSTON (June 19, 2007) – Texas Children’s Hospital today announced a $500,000 donation from Enbridge Energy Company, Inc. to benefit the Texas Children’s Neurological Research Institute, the world’s first dedicated pediatric neurological research facility. 

“This generous gift propels Texas Children’s Hospital’s efforts to perform groundbreaking research that is designed to lead to innovative treatment options for [...]

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Rett Press: Year-round special education program may end

Source

Grand Rapids Press, Grand Rapids, MI, circulation 133,000

Excerpt

Progress comes slowly for Maiya Novitsky, a 4-year-old with Rett syndrome. Her parents consider just maintaining her current level of ability an accomplishment. But her father, Scott Novitsky, said he is worried Maiya — and other students with severe disabilities — will regress dramatically if she is denied [...]

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RSRF and IRSA merge to form the International Rett Syndrome Foundation

Publisher’s note:

This is exciting news for the entire Rett Syndrome Community! As members of IRSA and long time supporters of RSRF, we look forward to being of service to this newly combined organization. Here is the press release in its entirety:

News Release:

Monday, June 04, 2007

Rett Syndrome News Release

For Immediate ReleaseJune [...]

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Rett Press: New Rett Syndrome fundraising idea? Tats for Rett

After 42 hours, 26 minutes and 4 seconds of tattooing, Marshall Olsen and Adam Kemp declared triumph. The friends decided they had broken the record for the world’s longest tattoo session, according to Guinness World Records. They collected donations, so far about $900, for the American Cancer Society and the International Rett Syndrome [...]

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Rett Press: Rett Syndrome Advocate and Fundraiser Lands UK Television Hosting Contract

Rett Syndrome Advocate Coleen McLoughlin has been signed up as a presenter for ITV in an exclusive two-year deal.
The fiancee of Manchester United and England footballer Wayne Rooney is to host a number of day time and peak time programmes for ITV1 and ITV2 between now and 2009. Her first project is an ITV2 series made by television company Initial. Coleen’s Real Women will see her on a mission to find naturally beautiful women for genuine high profile modelling [...]

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Rett Press: Girl with Rett Syndrome Denied A Public Education

20-year old Lindsey Ross, a young woman with Rett Syndrome is denied a Federal Court appeal to attend high [...]

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Rett Press: Autism rates rise, but so do hopes

The increase in autism cases is creating challenges for public schools across Michigan that are charged with providing a free education to all children, even if that means they have to treat a disability before a child can learn. Because insurance companies rarely cover costly therapies and programs for children with autism, the schools are often their only source of treatment. And the schools are searching for new approaches to reach [...]

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Rett Press: Big Bucks: Novartis focusing on rare diseases such as Rett Syndrome

Forbes Magazine reports that Novartis has compounds in preclinical tests that target Rett syndrome, a rare inherited brain [...]

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Rett Syndrome Fundraiser: Cape Cod Strollathon

Rett Syndrome Strollathon Fundraiser at Cape Cod Massachusetts USA. Contributions support Rett Syndrome [...]

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Researchers discover gene that causes Noonan Syndrome

Researchers report the discovery of the genetic malfunction that causes a form of mental retardation called Noonan Syndrome [...]

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