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HOUSTON (June 19, 2007) – Texas Children’s Hospital today announced a $500,000 donation from Enbridge Energy Company, Inc. to benefit the Texas Children’s Neurological Research Institute, the world’s first dedicated pediatric neurological research facility. “This generous gift propels Texas Children’s Hospital’s efforts to perform groundbreaking research that is designed to lead to innovative treatment options for [...] Source Grand Rapids Press, Grand Rapids, MI, circulation 133,000 Excerpt Progress comes slowly for Maiya Novitsky, a 4-year-old with Rett syndrome. Her parents consider just maintaining her current level of ability an accomplishment. But her father, Scott Novitsky, said he is worried Maiya — and other students with severe disabilities — will regress dramatically if she is denied [...] Publisher’s note: This is exciting news for the entire Rett Syndrome Community! As members of IRSA and long time supporters of RSRF, we look forward to being of service to this newly combined organization. Here is the press release in its entirety: News Release: Monday, June 04, 2007 Rett Syndrome News Release For Immediate ReleaseJune [...] After 42 hours, 26 minutes and 4 seconds of tattooing, Marshall Olsen and Adam Kemp declared triumph. The friends decided they had broken the record for the world’s longest tattoo session, according to Guinness World Records. They collected donations, so far about $900, for the American Cancer Society and the International Rett Syndrome [...] Rett Syndrome Advocate Coleen McLoughlin has been signed up as a presenter for ITV in an exclusive two-year deal. 20-year old Lindsey Ross, a young woman with Rett Syndrome is denied a Federal Court appeal to attend high [...] The increase in autism cases is creating challenges for public schools across Michigan that are charged with providing a free education to all children, even if that means they have to treat a disability before a child can learn. Because insurance companies rarely cover costly therapies and programs for children with autism, the schools are often their only source of treatment. And the schools are searching for new approaches to reach [...] Forbes Magazine reports that Novartis has compounds in preclinical tests that target Rett syndrome, a rare inherited brain [...] Rett Syndrome Strollathon Fundraiser at Cape Cod Massachusetts USA. Contributions support Rett Syndrome [...] Researchers report the discovery of the genetic malfunction that causes a form of mental retardation called Noonan Syndrome [...] |
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